A framework for genomic newborn screening

What medical opportunities and societal challenges are associated with genomic newborn screening?

On July 18, 2025, NEW_LIVES is cordially inviting participants to a conference in Heidelberg. At the center of the event will be the presentation and discussion of the multi-dimensional framework for an appropriate genomic newborn screening program from an ethical, legal and social (ELSI) as well as medical perspective that was developed in the project.

The program will include contributions from experts in medical ethics, law, medical psychology, human genetics, paediatrics as well as patient representatives. 

Beside specialists from related fields, the event is aimed at the public, media, and representatives from society and politics. 

Location: Marsilius Kolleg, Im Neuenheimer Feld 130.1, 69120 Heidelberg (Germany) 
Date: 18.07.2025 

• 11 a.m. - 5 p.m. – symposium
• 6 p.m. – panel discussion: NEW_LIVES recommendations and next steps for genomic newborn screening

(A detailed program will be made available to paricipants. Lunch and refreshments for participants will be provided.)

The event is free of charge. To attend the conference, please register by sending a message to lars.neth(at)med.uni-heidelberg.de. The panel discussion can also be attended without registration. Online participiation will also be possible on request.